Say A Prayer!

Well we were just notified of some new sucktastic law in Kalifornia. Seems that the Regional Centers(RC) can now only give a family 30 hours a month of respite care max. This is a HUGE cut back off our monthly hours we get for Connor from the RC.

Oh and to make it even better. This is effective two weeks ago. No, hey your hours are going to be reduced so get something else lined up for your medically fragile, severe handicapped son. So now the nursing company who supplied us with nurses for the hours we were given are now out the money they would have billed and have to eat the cost and pay the nurses who worked the time. And now we are scrambling.

Some nurse from RC is on her way out for a home visit to see if they can make a special consideration and give us more hours. So basically, the law exists yet there is a work around. And NO need what so ever to cut our respite hours so drastically immediately with no notice.

You wonder why the State of Kalifornia is in such a financial crisis?? Let me shed a little bit of light of why for you.

We were formally residents of one county in the state and moved to another county. Just about all State services Connor gets we had mailings of applications that we had to fill out AGAIN! He is almost 6 and had these services since he came home. You can't transfer this info and his services from one county to another??? His medical conditions and handicapped have not changed in the slightest because we moved.

But evidently there are different standards for each county. Are you freaking kidding me?? You all are getting your money from the same place, why would you have different qualifications??? And why would you waste the paper, postage, man hours in sending out applications that ask for ALL the same information, besides an address change that is already on record. SERIOUSLY!

Oh and it is summing up that the State of Kalifornia would rather my husband or myself quite or jobs, stop paying those extra taxes and all the other money they take from our paychecks and apply for other "services" in order for our family to make it.

Really! I feel guilty as it is for the nursing hours we get, and kinda stupid for bitching right now. But I don't care. I don't want to be nor do we strive to be one of those people sitting around waiting for a check from the government to support our kids.

But you know what??? It was NEVER our choice. If we wanted to bring our son home we had to have a certain number of nursing hours, otherwise Connor goes to a convalescent hospital for kids and when my insurance stops paying and we can't pay, he then becomes a ward of the state and I lose my son. Nice! Real fuckin nice!