Update

Well things got bad after my post last night. Gwynne ended up on 4 1/2 liters of O2 and still had a bit of trouble keeping stats at 94-95. There was talk of moving to ICU and having her breathing treatments every two hours instead of the current every three hours. Basically, hospital procedure is no one on 4 liters or more of oxygen is suppose to be on the Pediatric floor, only ICU. Had they decided to do treatments every two hours her butt would have been in ICU for sure.


We had lots of destats on 4 1/2 liters and had to keep her position very specific to keep her stats up. FUN TIMES!!! When is the last time you tried to get a 5 year old to sleep sitting up, head back slightly and not pull out the O2 while she slept. EXACTLY!!! Oh and every three hours she thought she was being attacked by the breathing mask for her treatment cause the poor thing was so damn tired.

Last night scared the crap out of me! I had visions of the last time she was like this and ended up pooping out in the ICU entubated and on a vent for about two weeks. You think this would a be a little easy with all the crap these kids have gone through and I have watched. But it seems to get harder. They are older now, they know what the hell is going on. Every time Gwynne's alarm would go off for low stats she would ask "momma, what does that mean?"

And recently Gwynne has also been asking about all of the scars she has and what happened and why. Gut wrenching to say the least.

She is now at 2 liters of O2 since this morning and doing well, just tried to put her down to 1 1/2 liters and about 5 minutes later we are back to 2 liters. Trying to get her to nap since about 3pm, but it seems I picked a bad time. Just as she was dozing off it was time for another treatment and for the nurse to do vitals.

My baby girl has dark circles under her eyes and needs some sleep. I could use a nap and a long hot shower myself at this point.



*Pics were taken yesterday before things went a bit south.